Neurofeedback update: Done. (Kinda.)

Most of what I write about my head is private, but sometimes there are things worth sharing with the larger world.

Monday will be my last neurofeedback session.

I have been doing NFB twice a week without a missed appointment for any reason since last October 12, almost a year. There have been no vacations, and no exceptions of any kind.

When I say “last session” the meaning is both conditional and hopeful. The strategy my practitioner uses is to continue until the client either gets significant symptom relief or can no longer tolerate the treatment. I’m in that second category.

In that case, the treatment is stopped for two months or so to let the side effects, which have been the dominant experience, fade out. At this point the benefits — whatever they may be — can be assessed. There’s a range of results from “Thanks, I feel better, bye!” through “Some things have improved and I would like to improve other things that are still bugging me” to “I feel somewhat better but we need to keep going with this.”

I’m apprehensive about this for obvious reasons. What’s going to be there when the bandages are removed? However there’s not a damned thing I can do about it other than try to relax and maintain a hopeful attitude. In any case I’ll be delighted to be done with the stress and side effects, which are very debilitating.

Apparently many NFB practitioners deny that there are painful effects. Based on my own experience that’s a huge mistake, and I would urge anyone going into serious therapeutic neurofeedback to carefully consider how bad a long period of aggravated and newly induced mental illness might be. I’ve not enjoyed the last year at all, and my career and some relationships have been permanently affected.

It’s entirely worth it to me if the result is good enough, since my alternatives were not looking very good. If you’re dealing with the neuropsychiatric results of a head injury, if you have disabling ADD-like symptoms that do not budge with other approaches, or if you have emotional problems that are life-threateningly severe and inexplicably resistant to conventional medical and psychotherapeutic treatment, then neurofeedback may be worth investigating. If your life is worth living despite your issues, this may not be for you.

I hope to report some good result by the end of the year.

A spammer darkly

hotelsamurai pointed me to this Wired News story which has interesting implications.

These researchers have invented a scheme for finding interesting images. Computers aren’t so great at it yet, but humans are. In fact, we’re so good at it that we recognize important images before we consciously know it, and this recognition can be measured by EEG. In their setup, a human watches images go by, and the ones that register on the EEG as “of interest” are set aside to be looked at more carefully. In short, it’s brain-aided image triage.

Given the current sources of funding for research, the examples given are surveillance camera shots, and the T-word has to be mentioned. This makes the whole project stink of 21st century panopticon. But that’s not the important part.

Using a human as a coprocessor, literally as a brain rather than as a person, is new. I imagine it doesn’t matter too much which brain you use, aside from some that are very good or very bad at recognizing images. It’s also likely that this isn’t fun “work.” Just looking at rapidly changing images for a long time is tiring, and if you aren’t able to do anything else but sit in the chair and let your unconscious processes do something, the boredom would be awful. From my own experience doing EEG biofeedback, the side effects of directly EEG-linked activity can be very unpleasant and unpredictable. I doubt anyone knows yet what the effect would be of long-term work as a rent-a-brain.

A Philip K. Dick dystopia looms, in which “braining” is something the poor do, like plasma donation or prostitution. Maybe it fucks you up pretty bad, but the Wal-Mart hasn’t been hiring in a while and you need cash. Too bad about the week-long psychoses a person gets after doing the hookups for a couple of weeks of 12-hour days…

What’s all this about a clam? Oh no…

After today’s phrenology session I had an interesting talk with Brain Lady. I found myself explaining to her why she sounded like a postscientific wacko at first, before I learned more about her. Most of the problem is her language. She speaks Science and has been working at very technical jobs in the mental health field for 20 years, but when she’s explaining things to a client she uses analogies and metaphors that have been totally ruined by New Age bubbleheads.

For example, she will say “I’m doing this site to push the energy back over to the other side of your brain”. On further questioning, she explains that this is a thumbnail description for a poorly understood phenomenon in which treating one site causes the voltages to go down there and up in another part of the brain. She doesn’t literally believe that she is pushing the energy around. She refers to treating multiple injuries as “like peeling off layers of an onion”. This sounds like she believes in concentric spheres of some intangible substance, but again it’s a simile. Her observations show her that multiple injuries often require multiple stages of treatment, but there isn’t any proven one-to-one correspondence between the injuries and the stages of treatment. And when she’s talking about electrical activity and mental acuity increasing after treatment, she calls it “waking up the brain”; another analogy. All of these things sound like something the local Crystal Anus Delver at the Metaphysical Bookhonk would say. In Brain Lady’s case, she’s working off many years of academic study and clinical experience in developmental disability, head injuries, special education, substance abuse treatment, and psychotherapy.

The other bad news I had for her is that her stuff sounds like Scientology. Wires on your head, healing old injuries, increased states of awareness, oh dear. You’re expecting Tom Cruise to appear stage left and congratulate you for choosing the right path. Here’s the hilarious part: she knows nothing about Scientology. As I was explaining how many parallels there are, her eyes got wider and wider. “Oh no, do people think this is like Scientology? That’s just a dumb cult!” Poor thing, she’s spent 20 years in the Science Hole and working with actual patients, and hasn’t noticed some weird cultural trends.

She pointed out that she doesn’t speak in Science much to clients because communicating the statistical links between voltage differentials and affective disorders to people with head injuries can be frustrating to both parties. I think I did manage to get across that she was using language and analogies that had been poisoned, though.

For my own part, I told her I had only really started trusting her judgment the day she went off on a rant about attribution errors and the importance of knowing your independent variables and not trusting your subjective observations, with several anecdotes of failed studies that hadn’t taken these precautions.